The Participatory Condition: Open Source Cancer. Brain Scans and the Rituality of Biodigital Data Sharing

Together with Alessandro Delfanti we have just finished writing a chapter on the forthcoming book “The Participatory Condition“, forthcoming on the University of Minnesota Press.

The chapter is titled: “Open Source Cancer. Brain Scans and the Rituality of Biodigital Data Sharing“, and it deals with La Cura project, which we created when Salvatore Iaconesi became diseased with brain cancer, and decided to turn the situation into a biopolitical performance interweaving hacking, society, anthropology and sciences.

From the chapter:

“While patient reclamation of the medicalized body is becoming a more common subject of discussion, by proposing the concept of the ritual we have here focused on the cultural significance of biodigital data: once liberated through hacking from their objectifying role in the context of medical institution, open source data provides a commons upon which new forms of digital solidarity can emerge.47 In doing so they can trigger public responses which enable collective reappropriations of the experience of cancer and other illnesses. Against techno-determinist ideologies, we also suggest that, by performing such rituals, members of digital countercultures—such as hackers—can turn to digital technologies, rather than only their bodies, as a battleground for the reconfiguration of social and political possibilities.”

The chapter will be featured in the forthcoming “The Participatory Condition“, a book resulting from the international dialogues originating from “#PCond. The Participatory Condition“, an International Colloquium held in Montreal at the Museum of Contemporary Art on November 15 and 16, 2013. The Colloquium’s main objective was to assess the role of media in the development of a principle whose expansion has become so large as to become the condition of our contemporaneity. The book is forthcoming and will be published in 2016.

The chapter, in an early, pre-release version, can be accessed at: http://www.escholarship.org/uc/item/0744f82b#

You can cite the chapter as:

Delfanti, A. and Iaconesi, S., “Open Source Cancer. Brain Scans and the Rituality of Biodigital Data Sharing,” in Barney, D., Coleman, G., Ross, C., Sterne, J. and Tembeck, T. (eds): The Participatory Condition. Minneapolis: University of Minnesota Press (forthcoming).

 

 

La Cura at Data Viz or Data Touch, in Paris

Join us in Paris on October 17th 2014 for “Data Viz or Data TouchArt, Science, Design and Data Visualisation, at Google’s Cultural Institute Lab, for a performative discussion about La Cura, the Open Source Cure for Cancer.

« Data viz or Data touch ? »
Art, Science, Design & Data visualisation

Friday  October 17th 2014
17h-19h

Lab de l’Institut Culturel de Google
8, rue de Londres, Paris

A conference organised by Décalab, together with:

  • Catherine Ramus, Designer Orange Labs Orange / Albertine Meunier, Artist
  • Emmanuel Mahé, Director of Research, EnsAD Paris, Research associate Décalab
  • Annick Bureaud, Art Critic, Director Leonardo/Olats
  • David Guez, artist, Performance « mémoire numérique & conservation »
  • Salvatore Iaconesi, engineer, interaction designer, artist, hacker, Performance « La Cura »

The conference abstract, in French:

Le terme français de « données » (data en anglais) peut porter à confusion. Elles ne sont pas « données », au sens où il suffirait de les collecter. Elles sont en réalité construites. La question de leur traitement – accès, collecte, analyse – ne doit pas faire oublier que les data sont en effet fabriquées. La relation à la réalité et aux autres s’en trouve modifiée.

On limite cependant trop souvent la matérialisation des données à leur simple « visualisation », c’est-à-dire à un seul de nos sens.

Quelle réduction ! Le son et le toucher sont en effet les parents pauvres des data designers.

Cette conférence perfomative vous propose une autre esthétique informationnelle : vous écouterez et toucherez des data.

Free entry with registration at:

https://docs.google.com/forms/d/1jQjBNFC3heggM9EUmP_4ayJSKpQ81J6UsTfphWUyGac/viewform?edit_requested=true

La Cura, data visualisation

La Cura, data visualisation

One Million Dreams at the MakerFaire in Rome

One Million Dreams at the MakerFaire in Rome, from October 3rd to 5th 2014, at the Auditorium Parco della Musica.

We will present an installation for the One Million Dreams project, through which we are capturing the expression of people’s dreams using social networks, to create a planetary database of dreams, and to make it available under the form of Open Data: for the arts, design, psychology, anthropology, communication sciences, humanities, sociology and more.

One Million Dreams

One Million Dreams

“Sleep is the best meditation” – Dalai Lama

Through the One Million Dreams project we search on major social network for people’s expressions about dreams. We analyse them using Natural Language Processing to understand which emotions are expressed, which topics, which modalities. And we relate it with news, events, global issues, trends and more.

One Million dreams, the main visualization

One Million dreams, the main visualization

We then visualise these dreams under the form of emotion/topic matrices (above), and under the form of correlation maps (below), highlighting the ways in which different dreams are related to each other, and under the form of maps (at the bottom), to understand where people dream, in which languages, and expressing which emotions and issues.

One Million Dreams, correlation maps

One Million Dreams, correlation maps

One Million Dreams, maps

One Million Dreams, maps

We make all of this data available under the form of Open Data, released with an Attribution license, to be freely accessed and used for multiple purposes: from arts, to research, analysis, and usage across disciplines.

What do people dream? Which topics do they dream about? About their families? Their job? Their social life? Their fears? The environment? Their joys? Or…

When do they dream it? How do they dream it? With which symbols, images, visions, desires, emotions?

Why do they dream it? And how is it correlated to their daily lives? Because of the condition of their jobs? Of their government? Of some recurring news? Of some event which is relevant locally? Nationally? Internationally? Globally? Because of something personal? What and how do they express about it?

This type of data can be very useful in gaining better understanding of the human condition, and about its evolution and transformation, across time, space, geography, cultures, communities, contexts.

Thus far, we have captured: more than 2 Million dreams; more than 6 Million expressions of desires and wishes; in 21 languages.

So, come and meet us at the MakerFaire in Rome, and follow the next steps here on Art is Open Source, and on Human Ecosystems.

OneMillionDreams at File Festival 2014 in S. Paulo

One Million Dreams will be featured at the File Festival 2014 in S. Paulo, Brazil.

This is the 15th edition of FILEElectronic Language International Festival in São Paulo –, which takes place this year from August 26 to October 5 at Centro Cultural FIESP – Ruth Cardoso.

The festival occupies four spaces in this venue: the Art Gallery, the SESI Digital Art Gallery (building facade), the FIESP Space, and the Mezzanine, besides the pavement of the Consolação, Trianon-Masp, and Brigadeiro subway stations.

The exhibition of FILE SP 2014 presents installations, interactive performances, animations, games designed for several platforms, machinima, video, net and sound art, as well as a selection of Japanese artists’ works in partnership with the Japan Media Arts Festival.

One Million Dreams is featured in the video art section of the festival.

One Million Dreams is a generative video that lasts around 200 hours which shows, instant by instant, a whole year of dreams captured from social networks.

One Million Dreams has been produced through the Human Ecosystems project.

Open Data as Culture: science, arts and technologies to co-create possible futures

How can Sciences, Arts and Technologies collaborate together with Societies, Communities, Administrations and Businesses to foster a culture of Openness, Transparency, Freedom and Empowerment?

We will find out in Trento, at the ICT Days event, together with Trento rise, the Bruno Kessler Foundation and the Department of Engineering and Information Science of the University of Trento.

The event will be on April 2, 3 and 4, 2014, in several locations across Trento (see http://2014.ictdays.it/en for info and program).

Our intervention will be on April 2nd, 2014, at 3:15pm, at the University of Trento, in the “Polo Scientifico e Tecnologico” in room B107.

We will use some of our projects such as VersuS, ConnectiCity, Human Ecosystems, and also Enlarge Your Consciousness and Incautious Porn, to highlight and reflect on how a radical transformation is needed about what we imagine citizenship to be.

It is a transformation which is linguistic and of the imaginary. It is about the shift of what we perceive as possible, to understand and embrace new ways of working together, of relating, communicating, making decisions and getting things done.

From our point of view, in the era of knowledge and information, we have all the tools we need (more are, of course, welcome, as long as they are open, accessible and usable).

What is missing is not found at the level of technologies, methodologies and techniques.

It is at the level of desire, expectation, emotion.

We find ourselves at the edge of a scenario in which we can reasonably transform what we expect economy, knowledge, public space and governance to be.

We call this possibility Ubiquitous Commons: the possibility to create a number of knowledge-based, recombinant Commons which radically augment the well-being of our ecosystems (human, relational, economic, social, political, natural…).

Our work is dedicated to enacting global states of performance, in which everyone is engaged into embracing this possibility in constructive ways, using arts and creativity to interweave scientific, technical and technological possibilities with our imaginaries: a linguistic virus which shifts our perception of what is possible.