The Participatory Condition: Open Source Cancer. Brain Scans and the Rituality of Biodigital Data Sharing

Together with Alessandro Delfanti we have just finished writing a chapter on the forthcoming book “The Participatory Condition“, forthcoming on the University of Minnesota Press.

The chapter is titled: “Open Source Cancer. Brain Scans and the Rituality of Biodigital Data Sharing“, and it deals with La Cura project, which we created when Salvatore Iaconesi became diseased with brain cancer, and decided to turn the situation into a biopolitical performance interweaving hacking, society, anthropology and sciences.

From the chapter:

“While patient reclamation of the medicalized body is becoming a more common subject of discussion, by proposing the concept of the ritual we have here focused on the cultural significance of biodigital data: once liberated through hacking from their objectifying role in the context of medical institution, open source data provides a commons upon which new forms of digital solidarity can emerge.47 In doing so they can trigger public responses which enable collective reappropriations of the experience of cancer and other illnesses. Against techno-determinist ideologies, we also suggest that, by performing such rituals, members of digital countercultures—such as hackers—can turn to digital technologies, rather than only their bodies, as a battleground for the reconfiguration of social and political possibilities.”

The chapter will be featured in the forthcoming “The Participatory Condition“, a book resulting from the international dialogues originating from “#PCond. The Participatory Condition“, an International Colloquium held in Montreal at the Museum of Contemporary Art on November 15 and 16, 2013. The Colloquium’s main objective was to assess the role of media in the development of a principle whose expansion has become so large as to become the condition of our contemporaneity. The book is forthcoming and will be published in 2016.

The chapter, in an early, pre-release version, can be accessed at: http://www.escholarship.org/uc/item/0744f82b#

You can cite the chapter as:

Delfanti, A. and Iaconesi, S., “Open Source Cancer. Brain Scans and the Rituality of Biodigital Data Sharing,” in Barney, D., Coleman, G., Ross, C., Sterne, J. and Tembeck, T. (eds): The Participatory Condition. Minneapolis: University of Minnesota Press (forthcoming).

 

 

La Cura at Data Viz or Data Touch, in Paris

Join us in Paris on October 17th 2014 for “Data Viz or Data TouchArt, Science, Design and Data Visualisation, at Google’s Cultural Institute Lab, for a performative discussion about La Cura, the Open Source Cure for Cancer.

« Data viz or Data touch ? »
Art, Science, Design & Data visualisation

Friday  October 17th 2014
17h-19h

Lab de l’Institut Culturel de Google
8, rue de Londres, Paris

A conference organised by Décalab, together with:

  • Catherine Ramus, Designer Orange Labs Orange / Albertine Meunier, Artist
  • Emmanuel Mahé, Director of Research, EnsAD Paris, Research associate Décalab
  • Annick Bureaud, Art Critic, Director Leonardo/Olats
  • David Guez, artist, Performance « mémoire numérique & conservation »
  • Salvatore Iaconesi, engineer, interaction designer, artist, hacker, Performance « La Cura »

The conference abstract, in French:

Le terme français de « données » (data en anglais) peut porter à confusion. Elles ne sont pas « données », au sens où il suffirait de les collecter. Elles sont en réalité construites. La question de leur traitement – accès, collecte, analyse – ne doit pas faire oublier que les data sont en effet fabriquées. La relation à la réalité et aux autres s’en trouve modifiée.

On limite cependant trop souvent la matérialisation des données à leur simple « visualisation », c’est-à-dire à un seul de nos sens.

Quelle réduction ! Le son et le toucher sont en effet les parents pauvres des data designers.

Cette conférence perfomative vous propose une autre esthétique informationnelle : vous écouterez et toucherez des data.

Free entry with registration at:

https://docs.google.com/forms/d/1jQjBNFC3heggM9EUmP_4ayJSKpQ81J6UsTfphWUyGac/viewform?edit_requested=true

La Cura, data visualisation

La Cura, data visualisation

La Cura, at Wave, with Susanna Pozzoli

La Cura will be featured at Wave, Collective Intelligence, an exhibit promoted by BNP Paribas, in Paris at the Parc de la Villette, from September 10th to October 5th 2014 through a video by artist Susanna Pozzoli.

Click HERE for some more information about La Cura at Wave.

Click HERE to know more about La Cura, an Open Source Cure for Cancer.

For the exhibit, a video has been created by artist Susanna Pozzoli, a beautiful, insightful contribution to La Cura:

 

Open Data as Culture: science, arts and technologies to co-create possible futures

How can Sciences, Arts and Technologies collaborate together with Societies, Communities, Administrations and Businesses to foster a culture of Openness, Transparency, Freedom and Empowerment?

We will find out in Trento, at the ICT Days event, together with Trento rise, the Bruno Kessler Foundation and the Department of Engineering and Information Science of the University of Trento.

The event will be on April 2, 3 and 4, 2014, in several locations across Trento (see http://2014.ictdays.it/en for info and program).

Our intervention will be on April 2nd, 2014, at 3:15pm, at the University of Trento, in the “Polo Scientifico e Tecnologico” in room B107.

We will use some of our projects such as VersuS, ConnectiCity, Human Ecosystems, and also Enlarge Your Consciousness and Incautious Porn, to highlight and reflect on how a radical transformation is needed about what we imagine citizenship to be.

It is a transformation which is linguistic and of the imaginary. It is about the shift of what we perceive as possible, to understand and embrace new ways of working together, of relating, communicating, making decisions and getting things done.

From our point of view, in the era of knowledge and information, we have all the tools we need (more are, of course, welcome, as long as they are open, accessible and usable).

What is missing is not found at the level of technologies, methodologies and techniques.

It is at the level of desire, expectation, emotion.

We find ourselves at the edge of a scenario in which we can reasonably transform what we expect economy, knowledge, public space and governance to be.

We call this possibility Ubiquitous Commons: the possibility to create a number of knowledge-based, recombinant Commons which radically augment the well-being of our ecosystems (human, relational, economic, social, political, natural…).

Our work is dedicated to enacting global states of performance, in which everyone is engaged into embracing this possibility in constructive ways, using arts and creativity to interweave scientific, technical and technological possibilities with our imaginaries: a linguistic virus which shifts our perception of what is possible.