La Cura featured on TED.com, and some exciting news

La Cura, My Open Source Cure for Cancer, has been featured as La Cura as TED talk of the day. Go check it out!

It is a wonderful chance to announce that the book about La Cura is coming out soon, with amazing features.

La Cura on TED

La Cura on TED

The book, coming out soon after the summer, will come out in Italy first for an important publisher, and will soon be featured in multiple countries (note: we’re still looking for publishing agreements in other countries; if you’re a publisher/editor/agent outside of Italy contact us! We would love to hear from you!)

The book will take the form of a narrative (from my point of view, from Oriana’s, and from the thousands of points of view of those who have taken active part in La Cura), a conceptual analysis of La Cura, a design publication featuring many, many wonderful contributions to La Cura, and a toolkit (technological, methodological, legal, aesthetic) to enact actions like La Cura to promote participatory medicine practices and radical, inclusive collaboration processes in which the entire society takes participatory action in the well-being of their fellow human beings.

Keep you eyes open for this, contact us if you want to join in the action and, of course, look around and share, share, share.

The performance continues.

La Cura featured as TED Talk of the day

La Cura featured as TED Talk of the day

An Open Source Cure for Cancer at King’s College in London

Join us at King’s College Department for Social Science Health and Medicine with the Bioethics and Society programme for a conversation on:

“The Cure”, an Open Source Cure for Cancer: a conversation with Oriana Persico and Salvatore Iaconesi

The network “Citizen Participation in Science and Medicine” is pleased to announce that Oriana Persico and Salvatore Iaconesi will be at SSHM on June 4th, 2015  to discus their project “La Cura” (The Cure), an Open Source Cure for Cancer: Hacking Participatory Medicine and the Biopolitics of Data.

When: June 4, 2015, 2-4 pm

Where: Room S -3.18, KCL Strand Campus.

When Salvatore Iaconesi was diagnosed with a brain cancer, he hacked his medical records and opened them up, transforming his disease into a participatory, collaborative performance. In the discussion, we will confront with the biopolitical implications of participatory medicine, and of the rituals of ethical hacking, as critical opportunities to reconsider the role of communities and societies in positive, constructive, inclusive ways.

Please register here (feel free to use this link if you want to invite others):

https://eventbrite.co.uk/event/16349197891/

For more information about “La Cura”, click here. You can also watch Salvatore’s Ted talk here.

For inquiries contact Dr Lorenzo Del Savio: lorenzo.del_savio@kcl.ac.uk

The Participatory Condition: Open Source Cancer. Brain Scans and the Rituality of Biodigital Data Sharing

Together with Alessandro Delfanti we have just finished writing a chapter on the forthcoming book “The Participatory Condition“, forthcoming on the University of Minnesota Press.

The chapter is titled: “Open Source Cancer. Brain Scans and the Rituality of Biodigital Data Sharing“, and it deals with La Cura project, which we created when Salvatore Iaconesi became diseased with brain cancer, and decided to turn the situation into a biopolitical performance interweaving hacking, society, anthropology and sciences.

From the chapter:

“While patient reclamation of the medicalized body is becoming a more common subject of discussion, by proposing the concept of the ritual we have here focused on the cultural significance of biodigital data: once liberated through hacking from their objectifying role in the context of medical institution, open source data provides a commons upon which new forms of digital solidarity can emerge.47 In doing so they can trigger public responses which enable collective reappropriations of the experience of cancer and other illnesses. Against techno-determinist ideologies, we also suggest that, by performing such rituals, members of digital countercultures—such as hackers—can turn to digital technologies, rather than only their bodies, as a battleground for the reconfiguration of social and political possibilities.”

The chapter will be featured in the forthcoming “The Participatory Condition“, a book resulting from the international dialogues originating from “#PCond. The Participatory Condition“, an International Colloquium held in Montreal at the Museum of Contemporary Art on November 15 and 16, 2013. The Colloquium’s main objective was to assess the role of media in the development of a principle whose expansion has become so large as to become the condition of our contemporaneity. The book is forthcoming and will be published in 2016.

The chapter, in an early, pre-release version, can be accessed at: http://www.escholarship.org/uc/item/0744f82b#

You can cite the chapter as:

Delfanti, A. and Iaconesi, S., “Open Source Cancer. Brain Scans and the Rituality of Biodigital Data Sharing,” in Barney, D., Coleman, G., Ross, C., Sterne, J. and Tembeck, T. (eds): The Participatory Condition. Minneapolis: University of Minnesota Press (forthcoming).

 

 

La Cura, at Wave, with Susanna Pozzoli

La Cura will be featured at Wave, Collective Intelligence, an exhibit promoted by BNP Paribas, in Paris at the Parc de la Villette, from September 10th to October 5th 2014 through a video by artist Susanna Pozzoli.

Click HERE for some more information about La Cura at Wave.

Click HERE to know more about La Cura, an Open Source Cure for Cancer.

For the exhibit, a video has been created by artist Susanna Pozzoli, a beautiful, insightful contribution to La Cura: